Having an adult son with autism has hard and complicating challenges. My first time hearing Luke’s diagnosis in 1994 made me numb. It did not seem real.
I did not realize how much I did. It is true. I need you. God I really need you.
I have lost some decent friends to death in the last three years. Life is not easy.
As I rewind I know I need you. Starting over like the seasons do year after year, I am left alone knowing my story is so intertwined with you. It is a beautiful tapestry of love.
I came home from a funeral today and while watering my plants, I sense your presence. Its from the gush of the water in my hose startled, I hold on and start spraying my flowers. I think about my autistic son jumping in the lake and I sense your presence.
Water brings life. It is interesting when we are in the desert of life, we may be numb to pain. When we are touched by rain, we wake up. I know I have. In the desert- I felt alone. When watering and being rained on, I bow my head and wondered why I could ever think of not needing you.
Many of you hate it. Today I embrace it as I sit in the back of a car with my son Luke. He is happy with his autism always giving me a child in an adult’s body. We both sense an awareness of contentment as the radio softly nurtures us with a melody of love and joy.
In the front seat my youngest son discusses life with his dad. He pauses to look back at me smiling and gently puts his hand on my knee.
My heart is full in these moments. These are them tucked away in my memories. Nothing can steal this time. I feel filled up with all I need.
Traffic is all around, but I am not driving. All is well on my road.
Imagine a world without hurt. Everytime I turn around lately, the world’s a bit more cold, distant, aloof. The pain is palpable.
I am full of life and know this feeling comes from deep within. It is a blessing from God. I know when I crash, however, it can be as if my breath is taken away from me.
Last night I attended Neil Diamond’s 50th anniversary concert here in Seattle. I loved every minute. After the concert, my friends and I stuck around the venue late walking around. A medic working with the musicians came up to us and asked me specifically if I was a big fan. I said yes. Before I knew it he handed me the oxygen mask Neil Diamond utilized right before he came back onstage to give his encore.
Random, don’t ya think? It was very sweet of him. It was a breath of fresh air figuratively for me and physically for our star. I wonder what I should do with it. I need your ideas!!!! I am one happy girl right now.
Ode to Diary Input on Valentine’s Day, 1999
Recently I read from an old journal of mine. My diary depicted a smart gal with more positivity a person could muster. There was no facebook, twitter, youtube, amazon or even google. There was just a lonely gal writing.
Problems are mixed up. Some are easy to deal with. Others are not. The heavier the conflict, the more noticeable my frailties would come to light.
Building on last week’s post, Outsmarting Getting Old, I wanted to thank you for your expressions of concerns and sharing with me your own struggles. All paths can bring healing. It is finding the one that works well for our own needs.
Today this little vehicle popped up next to me to my surprise! What if I would have not seen that thingie and hit it while I was driving. Oh my the hurt, right.
Lately I have been experiencing a bad round of chronic pain that is not well controlled with my regular medications. It is frustrating to live with this. I have been to more doctors lately, but I leave their offices more depressed. Doctors give too many pills as the answer.
I have a goal with all my physical issues and it is to maintain my happiness despite my pain. One other important aspect for me is to continually look for current modalities in overcoming my discomfort. The other option is finding a distraction to get through the ongoing pain. Perhaps a distraction is being with your partner enjoying each other. This distraction can come from friends too.
The development in some circles in medicine is to ID more precise medicine treatments. This can be done by studying one’s individual genetics. This tool is the future. What do some of you think? I believe potential breakthroughs are around the corner. Now that puts a smile on my face.