Cancer

Recently at my last appointment at the VA , I met this amazing character actor Arlen Dean Snyder from the film Heartbreak Ridge. Photo courtesy of IMDb.

The Today Show has one of my favorite weatherman Al Roker who was recently diagnosed with prostate cancer. As a familiar face on television, he has actively decided to educate the public and bring awareness. Mr. Roker’s doctor opted to do a biopsy. The pathology report showed an aggressive prostate cancer and he will need surgery.

Last November in 2019, I reported to my family physician with the VA a worrisome spot on my face under my eye. Being suspicious, I looked up the best surgical dermatologist in Seattle. In documented emails discussing back and forth almost begging my doctor , I requested this specialist. The only thing she offered was a picture taken of my face. In December of 2019 that photo of my skin lesion was read to be benign.

Again, I asked to have it taken off and I was made to feel like I wanted a face lift. This was very disturbing to me so I made a decision to go to a civilian surgeon. Unfortunately because of COVID, my surgery was not until July, 2020 and by this time the suspicious mole had grown four times its size since December of 2019. The good news was the specimen was taken to pathology to be read and I went home to heal.

For two months into the second week of September, I slowly mended. Never hearing from my doctor, I thought I dodged a bullet.  Starting to receive my bills for this surgery I called the billing offices. I mentioned to the billing personnel never being notified of my pathology report. She stated staff would call. Soon my phone rang and the nurse gives me the shocking news. “I am sorry to say your path report was scanned into your chart and it was missed. You have cancer.”

Shockingly I responded, “You are kidding me, right. How could you guys do this?”

As I hung up my phone, the anger was setting in as I had to go back to square one with the VA and get the doctor I originally requested. It has taken the VA system another two months to get me into this specialist and finally on Monday I will have an extensive surgical procedure to clean out the cancer and work on getting clear margins with plastic surgery if needed.

As a highly energized advocate for myself, but falling through the cracks at every turn has become like PTSD. Their were a number of doctors involved in my cluster of poor care and a VA system that is slow and not conducive to timeliness. I am not writing this to blame anyone as that is apparent there is enough blame to go around. Rather this should be looked at as a system’s failure along with physician’s fatigue syndrome ( lack of a better term).

I do not know if this is a volume and processing issue in the VA system keeping up with the soldiers’ care, but this was important for me to share with you as it is something that we can and should do better.

Think of me next Monday as I have more surgery and thanks to Al Roker for being public. It has given me some courage to do the same about my cancer. The wounds I have carried throughout my life are deep, but it does not mean I should not share with my readers. I need you guys ever more praying and sending healing thoughts.

Meeting the actor Arlen Dean Snyder at the VA was a lot of fun. This is a really nice guy.

 

 

 

Luke And Alesia

My friend from Kitsap texted me last night inquiring about my New Year festivity’s. I texted her back a photo exactly what I was doing at 8pm. I was standing in line at McDonald’s! Such excitement with my autistic son Luke, but when I look into his eyes I know exactly this moment here is where I belong.

Outsmarting Getting Old

Lately I have been experiencing a bad round of chronic pain that is not well controlled with my regular medications. It is frustrating to live with this. I have been to more doctors lately, but I leave their offices more depressed. Doctors give too many pills as the answer.

I have a goal with all my physical issues and it is to maintain my happiness despite my pain.  One other important aspect for me is to continually look  for current modalities in overcoming my discomfort.  The other option is finding a distraction  to get through the ongoing pain. Perhaps a distraction is being with your partner enjoying each other. This distraction can come from friends too.

The development in some circles in medicine is to ID more precise medicine treatments. This can be done by studying one’s individual genetics. This tool is the future. What do some of you think? I believe potential breakthroughs are around the corner.   Now that puts a smile on my face.

Smelling The Roses For Her

“This is heavy…” He was right.  

“Yeah.”  The flowers helped me concentrate on something else. Her death was heavy.  His perspective was ..”death is final. That’s it.”  I didn’t see it that way.   

The curtains to the “other” side was torn down for her.  Windows were opened when she took her last breath. My view is my friend’s death was a setting free. Not an end, but a new beginning. 

There is no forgetting her. Family will not. Nor will friends. Nature will keep her alive in my mind.  My concentration is on God’s natural beauty while I remember. Released from the earthly pain, I catch my breath.

Today is all I have and will make it count.  Ready for a day for God to show me the sun as I walk and smell the roses for her. 
 

Memory Loss

It’s inevitable . Don’t count yourself out. No one wins in this battle. 

She called me and voiced her concern. I said, “what’s the matter?”

“He asked me again how old I am.” Repeat.  Rewind.  Move forward.  It was the advice I gave. 

“Keep drinking your nightly glass of wine too!” That advice she liked. A lot . 

Memory issues are ever present in my own devised, messy life. As a brain tumor survivor,  I decided to do life as my will determines it to be. That can be complicated as well as simple. Never boring. 

Then there is my autistic son . He has real issues remembering everyday life sequences. I try to make life fun for him. It really helps. 

The problem I see with care takers is the isolation brought on by the inability to be out in society as much. My idea is we all need to help each other.  Forgiving those that are losing their memory also is probably not what a care provider or family member wants to hear, but it’s the only way one can be. 

For example, Caring for my son was days without sleep turning into countless years with sleep deprivation. My son turns 24 next week, 22 years I was the main provider. I had several helpers throughout the years and his dad was awesome, but most weighed heavy on my shoulders. 

Routine also needs to be kept constant. I did not realize it until my son was born. I am mostly a spontaneous person and do not care for everything being the same day in and day out.  Spontaneity was needed because my RN job caused me to have to document everything very closely by the clock. I sure did not want to do that with my personal life! 

Written in memory of those who lost their battle with dementia. 

Stupid Blog Writing

I am driven to write. There is no exception even when unhappy with my words. I can not compare myself to those that have editors or proofreader’s to read their work before it is published.  I even hate freshly pressed endorsed by this platform.

Why do I write these days?  I received that lone comment that gives me pause.  Hearing from a woman dealing with two rare brain tumors brought tears to my eyes.  She seems to have a strong will and a determination in her spirit. If you are reading this, I am glad you decided to follow me.

Spinning Out Of Control

I promise you this post will make you laugh and be smarter than a 5th grader. I promise!!!!!

The blinds on the doors can be closed to give one a sense of privacy and eliminate  a lot of the noise. 

I was out of control in my mind listening to my urologist state matter of factly, “You need surgery.” Yeah. Right. ( note to readers- read italicized captions under pics after you read the post ) .

My Ashes

Mom and I had a peculiar conversation.  After my recent hospitalization , we discussed living, dying, and a few things right in the middle .

It was apparent I must have some kind of strange situation inside my flesh. I have had way too many issues with modern medicine to think any different.  More surgery is in my near future.

It leaves me depressed, but not broken. Mom even joked she wanted my ashes on her fireplace so she could talk to me everyday. We laughed.

In all seriousness, the human spirit has been victimized to an extreme by TV and in particular politics with the hurt it brought. I sit back and realize I am not a republican nor a democrat. I am a person. I have needs just like you. We all deserve space to just be.

My health scares seem to grab me by the balls at times. Oh wait I don’t have balls !! Haha.

Yet, I stand up and am not afraid to weather whatever THE PLAN is for my life. Do not be fooled by those that say it is going to be ok . Sometimes it is not.  I devised a few phrases in my mind for you to ponder along with me. They are below.

This every girl does not give up easily and will remain as proactive about my health as I am able. A time comes when we all die. When it does, we should be doing something good for mankind.  How does that look to you ? To me, it means a few things:

1.  Live the little things.
2.  Keep the happy and keep it now.
3.  Look for purpose
4.  Pray
5.  Family
6.  Friends
7.  Touch and feel….

 

Ticking Time Bomb

I just got out of the hospital.  I am learning not to advertise much of my life on social media, but we all still need to reach out for help.  If any one knows me very good, they know I love watches.  Here is a bit of my collection.  I love swatches the most, but there is a Gucci in there somewhere.

Settlements

In 2013, several environmental groups sued BNSF Railway for polluting waterways in Washington State.  I was watching this case closely and wondered if the elections would have an impact.  I am quite certain it did.