Tag Archives: health

Spinning Out Of Control

I promise you this post will make you laugh and be smarter than a 5th grader. I promise!!!!!

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The blinds on the doors can be closed to give one a sense of privacy and eliminate  a lot of the noise. 

I was out of control in my mind listening to my urologist state matter of factly, “You need surgery.” Yeah. Right. ( note to readers- read italicized captions under pics after you read the post ) .

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My Ashes

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Mom and I had a peculiar conversation.  After my recent hospitalization , we discussed living, dying, and a few things right in the middle .

It was apparent I must have some kind of strange situation inside my flesh. I have had way too many issues with modern medicine to think any different.  More surgery is in my near future.

It leaves me depressed, but not broken. Mom even joked she wanted my ashes on her fireplace so she could talk to me everyday. We laughed.

In all seriousness, the human spirit has been victimized to an extreme by TV and in particular politics with the hurt it brought. I sit back and realize I am not a republican nor a democrat. I am a person. I have needs just like you. We all deserve space to just be.

My health scares seem to grab me by the balls at times. Oh wait I don’t have balls !! Haha.

Yet, I stand up and am not afraid to weather whatever THE PLAN is for my life. Do not be fooled by those that say it is going to be ok . Sometimes it is not.  I devised a few phrases in my mind for you to ponder along with me. They are below.

This every girl does not give up easily and will remain as proactive about my health as I am able. A time comes when we all die. When it does, we should be doing something good for mankind.  How does that look to you ? To me, it means a few things:

  1.  Live the little things.
  2.  Keep the happy and keep it now.
  3.  Look for purpose
  4.  Pray
  5.  Family
  6.  Friends
  7.  Touch and feel….

 

Ticking Time Bomb

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I just got out of the hospital.  I am learning not to advertise much of my life on social media, but we all still need to reach out for help.  If any one knows me very good, they know I love watches.  Here is a bit of my collection.  I love swatches the most, but there is a Gucci in there somewhere.

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Settlements

img_3495In 2013, several environmental groups sued BNSF Railway for polluting waterways in Washington State.  I was watching this case closely and wondered if the elections would have an impact.  I am quite certain it did.

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Brain Trippin’

Luke during a research study of his brain. Luke during a research study of his brain.

Did you know the bigger your head is the smarter you are? Perhaps you have heard that the more bumps you have on your skull means your IQ is flying off the charts? These were the ridiculous questions once pondered by those who studied the science of the brain. We have come so far is really an understatement. In fact it is clear our century is bringing new brain research to a whole new level.
This research does not come cheap. There are many places we can donate our money including Michael J. Fox’s Foundation or the Autism Society of America. As a brain tumor survivor and a mother of a son with autism, I am keenly aware of the essential need to cure brain diseases . It has been noted recently that one out of every six people is affected by brain disorders. The diseases of the brain touch us all which can include Parkinson’s, Alzheimer’s, Addiction and Strokes.
What would a cure mean for me? It would mean the world! I know one man in my neck of the woods who has done a tremendous amount of research on the brain. His is Paul Allen. I would highly recommend you checking out his site: http://www.alleninstitute.org/ .
I know many of us do not have the money to send off for research, but have you ever thought about donating your time or even yourself to be researched? I wanted to highlight this because if you are one of those affected by any of these medical problems, I would encourage you to participate in any research study you can. Our family has made it a practice to be involved with the research community in hope for a cure. We have done this as a family and it has been extremely gratifying. Our son Luke has been in at least 10 studies. I almost think I could call him a professional at it.
The mystery of the brain is amazing, but as I studied the brain’s general functions when I developed a large brain tumor-it made me aware of why I was having the problems I had encountered over a period of years before my tumor was diagnosed. My tumor was so large that it shifted the contents of my brain to one side. It sat on top of the motor cortex specifically the movement area of my brain that squeezed the vision, behavior, hearing and coordination centers. Here is a fascinating photo I give credit to TIME magazine that gives you a layman’s look at what part of the brain does what:
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I Did It My Way

Photo taken of the Cascade Mountains reveals the majesty of our world around us.

Photo taken of the Cascade Mountains reveals the majesty of our world around us.

I am not into reblogging, but this one from a peer of mine who is speaking from her experiences with the dying just about choked me up beyond words. She interviewed the dying and asked what regrets they had in their lives. As a cancer survivor on more than one occasion, I truly get this list. Most with good health will not, but you do have a chance to. Review this now and see what you can do to change your ways:
http://www.alternet.org/5-top-regrets-people-have-end-their-lives

Central Pain Syndrome

This photo was taken not long after my first brain tumor surgery.

This photo was taken not long after my first brain tumor surgery.

Having a brain tumor was the last thing on my mind (no pun intended) as I dealt with many symptoms leading up to that diagnosis. Apparently it was for the doctors too as they never entertained the thought even after carefully describing my symptoms 3 years earlier than my diagnosis. At least the initial doctor confessed he had “missed” it. I hold no animosity as a doctor that can be apologetic is better than the one who is an ass hole. You all know the type if you have had much medical treatment.
Over two years have gone by since my brain tumor was removed. In fact it is time for my annual MRI soon. I will keep you posted on the results. One of my most lasting and chronic problems I seem to present with these days is called central pain syndrome. It is one of several issues I have going on, but this one is tricky. Treatment for this is difficult. In fact the treatment can be worse than the pain. There is no cure. I hope to share more with you all as I can. I have some tough days and my focus is limited when I do not feel good. I take each moment and am thankful when I am not hurting.
I wanted to share with my readers a very important thing about the brain. Our brain is a vascular organ. If you can imagine your brain as a river with many creeks running through with purposeful directions than you have an idea how important all the blood vessels are in our head. No one knows for sure the cause and effect of certain disease processes that coexist and what may have to happen first for another disorder to occur. Much of medicine is a discovery just waiting to happen. When I had my brain tumor removed, I had a procedure called an embolectomy first than my crainiotomy the next day. It was soon after the embolectomy and being sent to the ICU that I had symptoms like a stroke patient. All the doctors like to deny that the cause of the stroke may have happened on their dime. No one knows for sure, but being a relatively young person ( ok I was in my 40’s when this happened) the most common cause of strokes is disease of the arteries in the brain. We all have heard of problems too that all of us can try to tame. One last thing readers, please work hard on those things you can change with a good doctor helping you: high blood pressure, high cholesterol, and physical inactivity.