Tag Archives: health

Memory Loss

It’s inevitable . Don’t count yourself out. No one wins in this battle. 

She called me and voiced her concern. I said, “what’s the matter?”

“He asked me again how old I am.” Repeat.  Rewind.  Move forward.  It was the advice I gave. 


“Keep drinking your nightly glass of wine too!” That advice she liked. A lot . 

Memory issues are ever present in my own devised, messy life. As a brain tumor survivor,  I decided to do life as my will determines it to be. That can be complicated as well as simple. Never boring. 

Then there is my autistic son . He has real issues remembering everyday life sequences. I try to make life fun for him. It really helps. 

The problem I see with care takers is the isolation brought on by the inability to be out in society as much. My idea is we all need to help each other.  Forgiving those that are losing their memory also is probably not what a care provider or family member wants to hear, but it’s the only way one can be. 

For example, Caring for my son was days without sleep turning into countless years with sleep deprivation. My son turns 24 next week, 22 years I was the main provider. I had several helpers throughout the years and his dad was awesome, but most weighed heavy on my shoulders. 

Routine also needs to be kept constant. I did not realize it until my son was born. I am mostly a spontaneous person and do not care for everything being the same day in and day out.  Spontaneity was needed because my RN job caused me to have to document everything very closely by the clock. I sure did not want to do that with my personal life! 

Written in memory of those who lost their battle with dementia. 

Stupid Blog Writing

fullsizeoutput_3978I am driven to write. There is no exception even when unhappy with my words. I can not compare myself to those that have editors or proofreader’s to read their work before it is published.  I even hate freshly pressed endorsed by this platform.

Why do I write these days?  I received that lone comment that gives me pause.  Hearing from a woman dealing with two rare brain tumors brought tears to my eyes.  She seems to have a strong will and a determination in her spirit. If you are reading this, I am glad you decided to follow me.

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Spinning Out Of Control

I promise you this post will make you laugh and be smarter than a 5th grader. I promise!!!!!

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The blinds on the doors can be closed to give one a sense of privacy and eliminate  a lot of the noise. 

I was out of control in my mind listening to my urologist state matter of factly, “You need surgery.” Yeah. Right. ( note to readers- read italicized captions under pics after you read the post ) .

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My Ashes

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Mom and I had a peculiar conversation.  After my recent hospitalization , we discussed living, dying, and a few things right in the middle .

It was apparent I must have some kind of strange situation inside my flesh. I have had way too many issues with modern medicine to think any different.  More surgery is in my near future.

It leaves me depressed, but not broken. Mom even joked she wanted my ashes on her fireplace so she could talk to me everyday. We laughed.

In all seriousness, the human spirit has been victimized to an extreme by TV and in particular politics with the hurt it brought. I sit back and realize I am not a republican nor a democrat. I am a person. I have needs just like you. We all deserve space to just be.

My health scares seem to grab me by the balls at times. Oh wait I don’t have balls !! Haha.

Yet, I stand up and am not afraid to weather whatever THE PLAN is for my life. Do not be fooled by those that say it is going to be ok . Sometimes it is not.  I devised a few phrases in my mind for you to ponder along with me. They are below.

This every girl does not give up easily and will remain as proactive about my health as I am able. A time comes when we all die. When it does, we should be doing something good for mankind.  How does that look to you ? To me, it means a few things:

  1.  Live the little things.
  2.  Keep the happy and keep it now.
  3.  Look for purpose
  4.  Pray
  5.  Family
  6.  Friends
  7.  Touch and feel….

 

Ticking Time Bomb

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I just got out of the hospital.  I am learning not to advertise much of my life on social media, but we all still need to reach out for help.  If any one knows me very good, they know I love watches.  Here is a bit of my collection.  I love swatches the most, but there is a Gucci in there somewhere.

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Settlements

img_3495In 2013, several environmental groups sued BNSF Railway for polluting waterways in Washington State.  I was watching this case closely and wondered if the elections would have an impact.  I am quite certain it did.

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Brain Trippin’

Luke during a research study of his brain. Luke during a research study of his brain.

Did you know the bigger your head is the smarter you are? Perhaps you have heard that the more bumps you have on your skull means your IQ is flying off the charts? These were the ridiculous questions once pondered by those who studied the science of the brain. We have come so far is really an understatement. In fact it is clear our century is bringing new brain research to a whole new level.
This research does not come cheap. There are many places we can donate our money including Michael J. Fox’s Foundation or the Autism Society of America. As a brain tumor survivor and a mother of a son with autism, I am keenly aware of the essential need to cure brain diseases . It has been noted recently that one out of every six people is affected by brain disorders. The diseases of the brain touch us all which can include Parkinson’s, Alzheimer’s, Addiction and Strokes.
What would a cure mean for me? It would mean the world! I know one man in my neck of the woods who has done a tremendous amount of research on the brain. His is Paul Allen. I would highly recommend you checking out his site: http://www.alleninstitute.org/ .
I know many of us do not have the money to send off for research, but have you ever thought about donating your time or even yourself to be researched? I wanted to highlight this because if you are one of those affected by any of these medical problems, I would encourage you to participate in any research study you can. Our family has made it a practice to be involved with the research community in hope for a cure. We have done this as a family and it has been extremely gratifying. Our son Luke has been in at least 10 studies. I almost think I could call him a professional at it.
The mystery of the brain is amazing, but as I studied the brain’s general functions when I developed a large brain tumor-it made me aware of why I was having the problems I had encountered over a period of years before my tumor was diagnosed. My tumor was so large that it shifted the contents of my brain to one side. It sat on top of the motor cortex specifically the movement area of my brain that squeezed the vision, behavior, hearing and coordination centers. Here is a fascinating photo I give credit to TIME magazine that gives you a layman’s look at what part of the brain does what:
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