Category Archives: Autism

Monkey On My Back

Stent running from my kidney all the way to you know where! Ugh


Brain injury awareness month was the last thing on my mind ( no pun intended) as I scoped through my home last week looking for an important document. I was getting mad at myself.
Many of my rooms are partially empty. There are a few reasons for this. Without blaming my autistic son too much, I am convinced he has wanted me to redo rooms for quite sometime. ( He breaks things. I guess we all need hobbies. This one is very expensive ).

Waiting on my Urologist! What Joy!


I have had a brain tumor and some form of TBI ( traumatic brain injury) and like my surroundings well controlled. My inability to find that document drove me crazy. I finally called someone who assisted me! Thank God.

Without boring my readers, I was working through authorizations , etc with my health needs. This alone can drive anyone nuts. 
Surgery again tomorrow and another overnight stay is enough to think about, but my mind has trouble staying focused at times. I do not care if I am labeled with a monkey on my back. Maybe the monkey gets the attention for a cause that may be way worse in others than my case. 

God Follower

Greatest Mom Ever (ask my sons)

Kidney Cancer Survivor

Brain Tumor Survivor

RN

Truth seeker 

Family friendly

Friend friendly

Monkey lover

Mental Health

Luke and mom on a very good day snowshoeing

 

If you read this, it will change your life…

Luke has a rather severe case of autism. It is coupled with Bipolar. He can rage at a moments notice.  If you are in his way, the chances of you getting physically hurt are high. 


I had just returned home from a trip to Hawaii ( yes I have a life) when I had my son over for a few nights.  While finishing supper with  Luke, he was his usual hyper self. What happened next was 5 hours of pure nightmare. 

Luke ran upstairs to his room and began hitting the back of his head into the wall. He has made several holes in the drywall, but it had been 5 years.  I caught only one bang of his head visually by the time I got to him.

While physically injuring himself, Luke was crying loudly and a hematoma was developing on his cranium.  I was able to ice his head, give him meds, and get him in a bath tub to calm down.  The pills kicked in, but the crying and other bad behaviors were persistent. Five hours later he was asleep from pure exhaustion. I did not sleep at all that night. 

You may wonder why I did not call 911. I want to tell you why. Here is what conversations took place from this incident. It was almost exact to what I had heard a few years ago when I reached out for help. One day I fear I will be unconscious and can not even make these calls. Luke did make me bleed. I am fine though:

1. I called the crisis hotline and left a message. That’s right I got a voicemail. 

2. I received a call in 30 minutes from a man who called himself a social worker who triaged the hotline. He said my son would be restrained if anyone came to my home. He put a referral in for me, although I said my son doesn’t need restraining.

3. The referral call came an hour later and she was a social worker too. She stated to me almost verbatim what the first man said. She added one bit of information by saying we have nothing good for adults with autism and our community is 20 years behind . 

4. I talked with Luke’s medicine management provider. He stated Luke was more than he could handle and refused to see him in his office the next day if he was aggressive.  He said call 911. I believe this is a cop out by providers and lame.  I think providers need to see the patients how they can be and not all calm.  I worked for 30 years as a nurse. I understand the hazards. 

5. I spoke with a RN friend who works as a mental health nurse on the largest psych unit in Seattle . She knows Luke personally and said again to me: “Luke would be restrained. Please try not to bring him or call 911.”  She knew my pain and our predicament.  

6. I called Luke’s case manager and met with him. Luke is being placed back on a list for a special home. Will there ever be one found ? We have been down this road before and three homes refused to take him. 

Rewind :  Will society ever do what’s right  for folks as Luke? 

Luke is better right now, but I wanted all my readers to know we have a crisis in mental health. Again, will we ever get this right?  I will not call 911 for my son to be handcuffed. 

Can We Talk?

Can we talk about autism? Or better yet the impact of autism on an individual? My son Luke is now an adult. His disability affects him in many ways.

While on a fun trip downtown to Seattle, Luke always enjoys the sights and sounds surrounding him.  As his mom, I can notice when he feels overwhelmed. It is in those times we have to slow him down.
At home he will lay around, but it is not his usual. Luke likes pacing. I am sure this is genetic! His dad and brother do the same!  If we do not put the pause button on Luke, however, his brain will go into overdrive.  This causes him extreme stress. As family we notice this. Others will not recognize the symptoms as easily.


Luke’s care providers know this about him too, but it took a lot of training. Being a provider for Luke can hold special circumstances due to Luke’s strength.


Can we talk about that strength of Luke’s?  I swear you would think he was the Incredible Hulk. He has broken so many things when he is upset. I decided long ago pretty things in my home weren’t important any longer !

Can you talk now and tell me – are you able to let go and not get upset if you lose every material possession you find precious to you ? I learned long ago I could.

Differences

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Beautiful day and evening in Washington State

 

Nestled in the majestic low hills of the mountainous region of Seattle, my true devotion can be felt in the most purest sense of the word.  While we all process through life’s many experiences, my personal belief system has matured in my hometown.

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Maximum Contrast


Photos taken over two decades ago like the one above find popularity in their grasp of thematics such as  mother/son bonding. My autistic son is in a blue outfit that I simply adored.

Perhaps the adornment was because I love my son so much , but the cute attire was no doubt a favorite of mine. The color blue is so peaceful to me. The blue is seen in the skies. Blues are also associated with boys. 

What also comes to mind is the pictures I have taken of stellar jays. Their blue bodies are gorgeous and always a fave picture to my readers. 


I thought today a lot of why I write. My perception was I was writing for myself. Yet as my audience grew, the writing did too. I make no false assumptions here as alesiablogs is still for me. To be sure of this,however, I post this photo of one of the most important men in my life. 

Freshly pressed has been a dream of mine. Could I ever write to the level of such prestige to gain that honor ? It remains to be seen , but as I create my own art in prose, it is my dream that my  art is pleasing to myself and the reader. Today I felt inclined to please myself and show off my cute boy. Mr. Luke I adore you just the way God made you. 

Friday Recovery

The sun is shining. It is back to nature for me. My backyard is stunning with birds this morning! 

My son made me smile looking at things a little different! The little mermaid float came by at Seattle’s Macy Parade. Got to love that smile!! 


Happy Weekend everyone! I am literally recovering more ways than one!! 

New Steps

My son Luke is preparing for his first day of work on his new job.  Last week , I was asked by a new site devoted to stories about how the disability autism impacts a family. Feel free to go to this link and read my work published on another site. Elizabeth also has a disabled son living in the Seattle area:

http://elizabethgriffin.com/category/your-stories/


Thankful to Chuck for the job for Luke!