Category Archives: Autism

A Head’s Up

The irony of my title is fascinating on several levels. It reminds me perhaps most of having a sense of control.  With a head’s up on a situation that needs a thoughtful answer,  I can usually work on a responsible solution. When my autistic son Luke was hospitalized , I was out-of-state and felt out of control of the circumstances.   Fortunately I do not have a learned helplessness mentality.  My fighting spirit keeps me positive  and the idea of developing a problem-solving strategy to deal with life’s difficulties is no stranger to me.

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Autistic Son Discharged From Hospital

FullSizeRenderOn 3/1/18, my autistic son Luke was placed in a group home.  Luke is 25 years old and needed more support than his parents could sustain.  I have shared past posts on my blog about Luke  and his life.   It is no small feat to navigate the Department of Social Services  in matters of mental challenges and neurological disabilities.

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Psychosis Or Normalcy

 

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Luke is calmed by the use of watching movies or listening to music with his headset. It works wonders when his autism seems to be making him upset. How many of us do not have autism and are relaxed by music?

(Disclaimer: Original post written 12/2012). When I was growing up, mental illness was shunned.  We did not talk about it in my household.  The first time I was exposed to the  mentally ill was when I visited my two aunts at their job. They were nurses in a mental hospital for chronic patients in Kentucky.  As a young girl of 17, I was immediately drawn into the strangeness of this new world. ( Today a person would not be allowed to visit like I was able).

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Autism: The Controversy

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My cousin’s daughter wrote an amazing report that covers the autism controversy  in regards to vaccines.  This piece is  well referenced  with many options for you to read the most comprehensive back stories behind the most contentious misleading “fake news” in the autism world.

http://www.matchcollegiate.org/2017/04/21/a-closer-look-at-the-vaccine-controversy/

or open with this hot link:  Hot Autism Article

 

A Mother’s Emotional Challenges Dealing With Her Autistic Son

Alesia and Luke in TAHOEHaving an adult son with autism has hard and complicating challenges.  My first time hearing Luke’s diagnosis in 1994 made me numb.  It did not seem real.

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Birthdays


Happy Birthday to the best guy ever.  Autism does not define you my son. What I see in you is amazing love that others can not even come close to realizing in their own lives. You have no understanding of lusting for money or materialism.  You may live in a world made of your own design,  but it is better in many ways to the cruel world the rest of us live in.

I hope and pray for you and want what is always best for you. You have family all over the country and they have missed out on getting to know you.  I am grateful to the family you have in your friends. 

You are 24 years old. You have a dad and mom who will love you for as long as we are here on earth with you .  I know you love God and He will always have you until you meet Him in person . 

Memory Loss

It’s inevitable . Don’t count yourself out. No one wins in this battle. 

She called me and voiced her concern. I said, “what’s the matter?”

“He asked me again how old I am.” Repeat.  Rewind.  Move forward.  It was the advice I gave. 


“Keep drinking your nightly glass of wine too!” That advice she liked. A lot . 

Memory issues are ever present in my own devised, messy life. As a brain tumor survivor,  I decided to do life as my will determines it to be. That can be complicated as well as simple. Never boring. 

Then there is my autistic son . He has real issues remembering everyday life sequences. I try to make life fun for him. It really helps. 

The problem I see with care takers is the isolation brought on by the inability to be out in society as much. My idea is we all need to help each other.  Forgiving those that are losing their memory also is probably not what a care provider or family member wants to hear, but it’s the only way one can be. 

For example, Caring for my son was days without sleep turning into countless years with sleep deprivation. My son turns 24 next week, 22 years I was the main provider. I had several helpers throughout the years and his dad was awesome, but most weighed heavy on my shoulders. 

Routine also needs to be kept constant. I did not realize it until my son was born. I am mostly a spontaneous person and do not care for everything being the same day in and day out.  Spontaneity was needed because my RN job caused me to have to document everything very closely by the clock. I sure did not want to do that with my personal life! 

Written in memory of those who lost their battle with dementia.